"From spring to summer, from autumn to winter, we have never been knocked down by fate. Even if I can't embrace you, we look at the same sky." In May this year, CCTV's "First Lesson of School Opening" released an anti-epidemic theme song called "Grass", which touched countless audiences.

The warm and powerful lyrics were typed word by word by Bao Zhenni, a 19-year-old Wenzhou writer who suffers from spinal muscular atrophy (SMA), with her only movable right thumb.

Even typing a simple Chinese character takes a lot of effort

The blue-and-white single bed placed against the window, and the breathing machine humming, Bao Zhenni's room is like a hospital ward.

Bao Zhenni lies on her side in bed with a thick quilt under her. Her father explained that this is to better fix his daughter's body. Her limbs are so fragile that if she moves carelessly, her joints may break. Like all SMA patients, Bao Zhenni has limited mobility. The only thing she can move freely now is her right thumb.

She installed a mouse application on her mobile phone, and with the eye movement instrument donated by caring people, she can realize almost all routine operations on her laptop.

Just to type a simple word “Bao”, Bao Zhenni has to move her finger widely on the virtual keyboard. "Writing can give me a sense of security and release my emotions. In this way, I know that I really exist. "

"She likes it so much and insists on it. What we can do is to take good care of her." Bao’s father kept the poems and songs written by Bao Zhenni in many places at home. He is proud of her daughter.

I have grown up, and I want to shoulder the responsibility

In 2002, Bao Zhenni was diagnosed with SMA after her first birthday. The doctor judged that she would live up to 4 years old. Fortunately, under the careful care of her parents, this judgment did not come true.

Last year, to make their daughter have an unforgettable 18th birthday, Bao Zhenni’s parents brought a generator, an oxygen generator, and a breathing machine, and took her out of the door. That is also one of Bao Zhenni's few experiences of going out in recent years.

"I have grown up, and I want to shoulder the responsibility. There’s more I can do.”

On February 29 this year, Bao Zhenni received a phone call from the director of CCTV, hoping that she could rewrite the lyrics of the song "Grass" written for the SMA group with the theme of anti-epidemic. A few months later, a moving "Grass" appeared in front of everyone with a new look. Bao Zhenni said that she has a sense of accomplishment of "fulfilling her mission".

Listen more, see more, write more, and learn more to find the source of creation

The songs she wrote lyrics for include pop music, folk songs, and even rock and roll. Bao Zhenni said that she has to ask herself with professional standards. "Writing lyrics for others must find their unique style."

When her illness was not as serious as it is now, Bao Zhenni attended the No.2 Primary School in Chashan Town, Wenzhou for 6 years until 2014. Now she had to stay at home and live on a ventilator because of her illness.

"I seem to have derailed from the world." Bao Zhenni lies in her room every day, staring at the ceiling. She is more sorry than afraid. She misses her friends who helped her push a wheelchair at school and the classmates who came to her for help during the break.

To get back on track, she signed up for an open class online and learn English, French and German. There are all kinds of movies and documentaries in her computer's webpage favorites. Recently, she was watching an art documentary about the cultural creativity and fashion industry.

"I observe the world through the screen,” said Bao Zhenni. During these years at home, she has already become a professional internet surfer, and when she meets interesting topics, she chats with her friends on the Internet. She said that only by listening more, reading more, writing more, and learning more can her creative source not be exhausted.

Although Bao Zhenni stays on her bed most of the time, there is a big paradise in her heart.

(Compiled by Xu Yuhong, translated by Tao Mingzhou)